The Investigating MEAsures of SUrvival and REsidence among persons with Dementia (I-MEASURED) study seeks to better understand the experiences of persons living with dementia and those who care for them in order to improve the way we test new treatments for Alzheimer’s Disease and Related Dementias (ADRD).
I-MEASURED
Investigating MEAsures of SUrvival and REsidence among persons with Dementia (I-MEASURED) is a study that seeks to better understand the experiences and priorities of persons living with dementia and those who care for them in order to improve the way we test new treatments for Alzheimer’s Disease and Related Dementias (ADRD). I-MEASURED is led by Dr. Catherine Auriemma of The PAIR Center in partnership with Dr. Jason Karlawish of the Penn Memory Center.
Who can join?
- People diagnosed with mild or moderate ADRD who have been seen by a PMC clinician in the last 12 months
- Care partners of persons with mild, moderate or severe ADRD – a care partner is someone older than 18 who provides any type of unpaid support (social, emotional, physical, etc.)
- All participants must be older than 18 and able to communicate in English
What does the I-MEASURED study include?
- Study Activity 1: an interview about your experiences living with or caring for someone with ADRD
- Study Activity 2: a series of survey questions comparing the importance of different priorities
- Study Activity 3: an interview to share what we learned and get feedback
- Each study activity will take 30-60 minutes
- You can participate in 1, 2, or 3 study activities
Compensation
- Each person will be paid $40 for each study activity completed
Participation in this study will not delay or affect your care.
Contact
To join this study or ask questions please contact our investigator Catherine Auriemma, MD, MSHP, at catherine.auriemma@pennmedicine.upenn.edu or our research coordinator, Julia McMillan, at julia.mcmillan@pennmedicine.upenn.edu