By Danny Yarnall
The National Academies of Sciences, Engineering, and Medicine need your input for a decade-long plan on how best to prevent, treat, and care for individuals living with Alzheimer’s and related dementias and their care partners.
The National Academies are issuing a call for commentaries from people living with Alzheimer’s Disease and Related Dementias (ADRD) and anyone who currently cares or has cared for someone with ADRD. The commentaries will inform the Decadal Survey of Behavioral and Social Sciences Research on Alzheimer’s Disease and Alzheimer’s Disease-Related Dementias. These decadal surveys outline the 10-year plan for research goals and identify opportunities for prevention, care, and better understanding of the disease in society.
The National Academies are looking for submissions of up to 1,000 words from individuals with Alzheimer’s or other dementias, and individuals that are serving or have served as care partners to individuals with dementia. Submissions can touch on any or all of the topics below as they relate to ADRD:
- Experiences and challenges related to the diagnostic process
- Support services for both individuals with dementia and care partners
- Communication with medical providers
- How living with dementia or caregiving responsibilities has affected your employment and engagement in social activities and hobbies, and
- How communities might better support those affected by Alzheimer’s disease and other dementias
The deadline for submissions is March 13, 2020.