Stigma of Alzheimer’s disease
The stigma of Alzheimer’s disease has notable impacts on patients, their families and society. It leads to lower quality of life of persons with dementia, can spillover to worsen health outcomes of caregivers and can discourage individuals from seeking appropriate care and participating in research. P3MB is gathering and analyzing data from varied sources to understand mechanisms of how stigma effects persons in varying stages of cognitive decline and how stigma associated with clinical stages of disease does or does not spill over to affect cognitively unimpaired people who learn they are at risk for Alzheimer’s disease through gene and biomarker testing.
To learn more about what we’re discovering:
Stites SD, Karlawish J, Harkins K, Rubright JD, Wolk D.: Awareness of Mild Cognitive Impairment and mild Alzheimer’s disease dementia diagnoses associated with lower self-ratings of quality of life in older adults. The Journal of Gerontology. Series B, Psychological Sciences and Social Sciences 72(6): 974-985, Oct 2017.
Stites SD, Johnson R, Harkins K, Sankar P, Xie D, Karlawish J.: Identifiable characteristics and potentially malleable beliefs predict stigmatizing attributions toward persons with Alzheimer’s disease dementia: Results of a survey of the U.S. general public. Health Communication 33(3): 264-273, Mar 2018. PMCID: PMC5898816
Stites SD, Rubright JD, Karlawish J.: What features of stigma do the public most commonly attribute to Alzheimer’s disease dementia? Results of a survey of the U.S. general public. Alzheimer’s & Dementia: The Journal of the Alzheimer’s Association 14(7): 925-932, Mar 2018.
Stites SD, Harkins K, Rubright J, Karlawish J: Relationships between cognitive complaints and quality of life in older adults with Mild Cognitive Impairment, mild Alzheimer’s disease dementia, and normal cognition. Alzheimer’s Disease & Associated Disorders Page: 276, 2018 Notes: doi: 10.1097/WAD.0000000000000262.
Stites SD, Rubright JD, Harkins K, Wolk D, Karlawish J.: Awareness of mild cognitive impairment and mild Alzheimer’s disease dementia diagnoses associated with decreased self-ratings of quality of life in older adults. Alzheimers Dementia 14(7): 599-600, 2018 Notes: doi:10.1016/j.jalz.2018.06.681
Stites SD.: Cognitively healthy individuals want to know their risk for Alzheimer’s disease: What should we do? Journal of Alzheimer’s Disease 62(2): 499-502, 2018.
Stites SD, Milne R, Karlawish J.: Advances in Alzheimer’s imaging are changing the experience of Alzheimer’s disease. Alzheimer’s & Dementia: Diagnosis, Assessment & Disease Monitoring. doi: 10.1016/j.dadm.2018.02.006 10: 285-300, 2018.
Stites SD & Karlawish J.: Stigma of Alzheimer’s Disease Dementia: Considerations for Practice. Practical Neurology Jul 2018 Notes: http://practicalneurology.com/2018/06/stigma-of-alzheimers-disease-dementia/